| denizversusms.nl | Stichting DenizVersusMS | Deniz was diagnosed with MS in 2016 and, despite medication, experiences a decline in his health. He has raised €65,000 through crowdfunding for a stem cell therapy, which he initiated in April 2023 and whose costs have been covered. The website provides updates on his progress via blogs and links to interviews in various media, as well as information on how to donate. | Fundraising → Crowdfunding 22 | stem cell therapy 10 ms 55 crowdfunding 246 donation 5110 blog 13392 | |
| nationaalmsfonds.nl | National MS Society | The website provides information about MS, including causes, diagnosis, and treatment, and targets individuals with MS, healthcare professionals, and researchers. The foundation funds research into better treatments and a potential cure for MS and organizes various activities such as the MS Collection Week and the MS Motion sports event. Furthermore, the website offers opportunities to donate, bequeath, and participate in events and projects, and includes information about employees and contact details. | Charities → Fundraising 1005 | ms 55 donation 5110 research 8967 care 12338 event 45199 | |
| msvereniging.nl | Multiple Sclerosis Association Netherlands | The website offers information about Multiple Sclerosis (MS), including its types, symptoms, diagnosis, treatment, and available centers. The organization provides various services, such as a helpline, coaches, a magazine, regional meetings, and opportunities for membership and donation. In addition to providing information, the association advocates for the interests of people with MS, such as lobbying for better care and reimbursement of treatments. | Social Organization → Patient Organizations 259 | helpline 28 multiple sclerosis 39 advocacy 357 magazine 2182 membership 10442 | |
| ms.nl | MS.nl | The site offers information about multiple sclerosis, reviewed by professionals and experienced individuals, including information about the risks of certain medications and skin cancer. MS.nl facilitates contact with other people living with MS through forums, blogs, and activities. The website regularly publishes news articles and organizes events, such as the Kinder MS Dag in Blijdorp, to provide support and information. | Context → Community 57410 | multiple sclerosis 39 community 7931 news 15293 | |
| msnetwerkalkmaar.nl | MS Netwerk Alkmaar | MS Netwerk Alkmaar offers a network of physiotherapists, occupational therapists, speech therapists, and dietitians working together to improve the quality of care for people with MS. The website provides information about the specializations of the different healthcare providers, such as physiotherapy, focused on optimizing body function and promoting independence, and occupational therapy, which focuses on maintaining self-management and control over one's life. The network originated from the need to create a fast and efficient way for patients with MS to connect with healthcare providers, and also facilitates collaboration within the various professions. | Health → Medical Care & Services 29461 | dietetics 197 occupational therapy 211 speech therapy 540 physiotherapy 4688 network 11123 | North-Holland → Alkmaar 6507 |
| msresearch.nl | MS.nl | The website offers information about the causes, forms, symptoms, treatment, and disease progression of MS, as well as stories from people living with the disease. MS.nl funds and stimulates scientific research into the cause and cure of MS and offers opportunities for donations and support for research. The website also publishes news, organizes events such as 'The Afternoon for People with MS,' and provides information about research projects and researchers. | Charities → Fundraising 1005 | ms 55 medication 1164 donation 5110 story 8285 research 8967 event 45199 | |
| mssherpa.nl | MS Sherpa | MS Sherpa is a smartphone-based application that allows users to objectively measure and track their MS symptoms. The app offers smart features and reminders tailored to individual needs. Through the tool, users can make their own disease progression visible, leading to a personalized treatment plan and more control over MS. The app enables sharing of data with the treatment team and jointly choosing the best treatment. The website also provides information about the app, accompanying research and user satisfaction, with a 4/5 rating in the app store and the presence of MS centers in the Netherlands using the tool. | Applications → Apps 435 | symptoms 558 smartphone 1344 app 4595 data 5872 treatment 21203 | |
| coloplastms.nl | Coloplast | The website explains what Multiple Sclerosis is and how the disease affects the central nervous system, resulting in nerve damage and signal disruption. It highlights the often overlooked bladder and bowel problems that frequently occur in people with MS. The site includes personal experiences from patients (Fabiola, Ilse, and Eva) describing their experiences with bladder problems and linking urine loss to MS. | Men’s Issues → Urology 176 | bowel 14 bladder 19 multiple sclerosis 39 symptoms 558 newsletter 6504 | |
| moveyourcrowd.nl | Move Your Crowd | Move Your Crowd offers various forms of support, including books, online courses, personal coaching, workshops and inspiring content. The website focuses on helping entrepreneurs to transform their ideas into a plan that is attractive to the ‘crowd’ and therefore can be financed through crowdfunding. Move Your Crowd offers a range of services, such as presentations, workshops, masterclasses, and full campaign guidance, facilitating the realization of projects through crowdfunding. | | crowdfunding 246 campaign 3428 network 11123 workshop 19325 | |
| steunliset.nl | Stichting Steun Liset | Liset van Wijnen, 41 years old, lives with her partner and daughter in Velserbroek and was diagnosed with MS 14 years ago. Her illness limits her mobility and ability to work, making her now dependent on aids such as crutches, a walker, and a wheelchair. The website describes her personal story and the need for stem cell therapy to treat her illness. | Social Issues & Welfare → Social Affairs 601 | stem cell therapy 10 ms 55 daughter 108 wheelchair 306 partner 4272 | Velsen → Velserbroek 297 |
| yogaonline-ms.nl | Yoga Online MS | The website provides an online yoga program designed for people with MS who are struggling with the impact of the disease on their lives. Ilse, the founder, shares her personal experiences and how she helped a friend with MS to better accept and manage the disease. The website offers free resources such as a relaxation meditation and a webinar, and an e-book with tips for improving well-being. | Conferences & Meetings → Medical Conferences 68 | webinar 870 meditation 2400 life 2673 yoga 3704 health 6366 | |
| msnetwerk.nl | Nationaal MS Fonds | The platform has been online since Thursday, February 29, 2024, and provides reliable information. The website focuses on nurses affiliated with the National Association of MS Nurses. Vacancies are also offered, such as for members of the MS training committee, and activities and training sessions are described. | Social Organization → Patient Organizations 259 | ms 55 nurse 261 | |
| msvnamsterdam.nl | MSVN Amsterdam | The website includes information about various activities such as themed afternoons, swimming, MS cafes, and digital get-togethers. A key part of the website is the report and slides from the Cognitietour 2.0, focused on discussing cognitive impairments in MS. The website offers practical tips, such as renting a wheelchair accessible vehicle through Welzorg Go, and information about MS and work. | Social Organization → Patient Organizations 259 | multiple sclerosis 39 | North-Holland → Amsterdam 41253 |
| mszorgnederland.nl | MS Zorg Nederland | The organization promotes collaboration between specialized healthcare providers and develops guidelines to improve MS care, with the patient at the center. The website contains information about the disease MS, various treatments, practical examples, and a care finder tool for users to find their regional care providers. MS Zorg Nederland offers training and courses for caregivers, such as a basic course on MS care and a refresher course on TENS therapy, and organizes events like 'MS Talk' and 'MS in Beeld' to share knowledge about MS. | Health → Medical Care & Services 29461 | ms 55 caregiver 1167 collaboration 16036 training 28133 | |
| ms4ri.nl | MS4 Research Institute | The website contains information on ongoing and completed studies regarding multiple sclerosis, including clinical trials. Recent publications on topics such as digital self-monitoring of MS, questionnaire validation, and the effectiveness of specific treatments (such as the 'Can Do treatment') are presented. The site also offers contact information and a sitemap for navigation. | Research → Medical Research 384 | multiple sclerosis 39 evaluation 224 study 720 publication 2018 treatment 21203 | Gelderland → Nijmegen 9384 |
| msmotion.nl | National MS Society | The event provides participants with the opportunity to get involved in research for MS, a debilitating disease that has a significant impact on both the sick person and their surroundings. MS Motion 2025 will take place on Sunday, September 14th at Park Vliegbasis Soesterberg, where participants can run, walk, or roll to reach the finish line. To date, €116,032 has already been raised of a target of €265,000, with 739 participants and 3,788 donations, demonstrating the impact made by the participants. | Outdoor Activity → Running 1829 Outdoor Adventures → Walking 1260 | ms 55 participant 1934 donation 5110 research 8967 event 45199 | Soest → Soesterberg 410 |
| mscnn.nl | Multiple Sclerosis Center North Netherlands | The website provides information for patients, professionals, and researchers about MS, including the disease itself, specific care and treatment, and scientific research programs. The center is a collaboration between various hospitals and research groups in North Netherlands, including the UMCG, Martini Ziekenhuis, Ommelander Ziekenhuis and Medisch Centrum Leeuwarden. The website also provides information about research projects, dissertations, and scientific articles, as well as a list of current news items and contact options. | Health → Medical Care & Services 29461 | multiple sclerosis 39 ms 55 hospital 560 research 8967 care 12338 treatment 21203 | |
| jongenms.nl | Stichting Jong&MS | The website offers a wide range of information about MS, including symptoms, medication, treatment, and practical tips. Jong&MS promotes the stories of other young people with MS, sharing their experiences and tips for managing their diagnosis and care. The platform also provides opportunities for peer connection, events, news, and volunteering, with the goal of creating a supportive community. | Social Issues → Social Organization 13315 | ms 55 personal development 810 community 7931 story 8285 | |
| erasms.nl | ErasMS MS Center | The center focuses on the collaboration between doctors and researchers at the Erasmus MC to gain more knowledge about MS and improve treatment. The website provides extensive information about MS, including causes, symptoms, diagnosis, different MS types, treatment methods, and lifestyle advice. Information is available for patients, healthcare providers, students, and trainees, as well as data on ongoing studies and research projects. | Research → Medical Research 384 | ms 55 disease 285 study 720 research 8967 treatment 21203 | South-Holland → Rotterdam 25048 |
| msinbeeld.nl | Stichting MS in Beeld | The foundation offers various types of content, including videos on specific aspects of MS, such as the menstrual cycle, menopause, cognitive issues, and the effectiveness of stem cell therapy (HSCT). Additionally, there are podcasts and blogs covering personal experiences with MS, relationships, and living with the disease. Information is also provided on stem cell protocols and their effectiveness. The website includes information about scientific conferences and advice on vaccination after HSCT, as well as the issue of reimbursement from the MS association in the Netherlands. | Reference → Health Information 48 | multiple sclerosis 39 vaccination 494 podcast 3328 video 6714 blog 13392 | |
| ziemszo.nl | ziemszo.nl | The page was created after the tragic death of Gijs, who was 27 years old, as a result of a traffic accident. The author emphasizes that Gijs always supported and encouraged her to live healthily, particularly by paying attention to her diet and listening to her body. The website serves as a platform to stimulate awareness about MS, and the author asks for support in completing this project in honor of her son. | Personal Websites → Memorial Pages 53 | multiple sclerosis 39 death 356 diet 747 | |
| zeewierkopen.nl | zeewierkopen.nl | Mariska van Erk was diagnosed with MS at the age of 18 and advised to avoid alcohol, chocolate, and pork. She sought alternative treatments and discovered the benefits of barley grass capsules (Barley Green) for her energy and well-being. Ultimately, she found seaweed to be a replacement for the capsules and used it as part of a healthy diet to detoxify her body. | Supplements → Natural Supplements 152 | ms 55 seaweed 57 diet 747 health 6366 energy 9075 | |
| golfenvoortim.nl | Tim Foundation | The Tim Foundation collects money to support research and projects aimed at developing medications and treatments for energy metabolic diseases. Each week, 1 to 2 children are born with an energy metabolic disease, a rare condition for which there is currently no medication. The Tim Foundation is committed to raising as much money as possible to support research. A first trial with the intended medication on the first patients has started, but expanding these trials and developing the medication requires much time and money. | Disease & Treatment → Rare Diseases 229 | disease 285 medication 1164 donation 5110 research 8967 energy 9075 collaboration 16036 | |
| steunmscentrumamsterdam.nl | Stichting Steun MS Centrum Amsterdam | The foundation focuses specifically on supporting the MS Center Amsterdam, which is part of Amsterdam UMC. The website provides information about research projects, personal stories of people with MS, and the people behind the foundation. The foundation encourages donations to contribute to the scientific development of treatments for MS. | Philanthropy → Donations 140 | ms 55 donation 5110 foundation 6678 story 8285 research 8967 | North-Holland → Amsterdam 41253 |
| moedervolstoplichten.nl | Moeder vol Stoplichten | The organization offers programs and activities, including ‘Tasjes vol stoplichten’ (Light-Up Pouches), to discuss MS and its impact on families. Moeder vol Stoplichten collaborates with various partners, such as Kiwanis MS Vereniging, Reinier Haga Groep, and the Zorg en Zekerheid Fonds 1818, to achieve its goals. The website contains documents such as policy plans, annual reports, and newsletters, and provides information about the organization and its activities. | Child Welfare → Support Organizations 270 | ms 55 pouch 68 partner 4272 parent 4318 child 11566 care 12338 | |
| metmsenvork.nl | with MS and fork | The protocol combines elements of the paleo and ketogenic diets, emphasizing the role of fats, gut health, and movement in treating MS. The website offers a wide selection of paleo recipes, including bread, dressings, sauces, soups, salads, and desserts. In addition to recipes, the site contains information on various aspects of health and lifestyle, such as fasting, the Wim Hof Method, the influence of fats, and longevity. | Diseases → Autoimmune Diseases 31 | ms 55 diet 747 nutrition 4935 recipe 5142 health 6366 | |
| msvrijleven.nl | Stichting MS-Vrij Leven | The foundation takes over the financial process for the patient, allowing them to focus entirely on raising funds through crowdfunding. The foundation offers an alternative crowdfunding option with lower costs than regular platforms and has an ANBI status, making donations tax-deductible. The foundation relies on donations and support to continue its activities and assist MS patients with financing their stem cell transplants. | Charities → Fundraising 1005 | stem cell transplant 12 anbi 120 crowdfunding 246 patient 4082 donation 5110 | |
| mscentrum-adrz.nl | MS-Centrum ADRZ | The website covers various forms of MS, including multiple sclerosis (MS), clinically isolated syndrome (CIS), relapsing-remitting MS (RRMS), secondary-progressive MS (SPMS), and primary progressive MS, as well as related conditions such as Lyme disease and M. Devic (neuromyelitis optica). The website describes the diagnostic methods used, such as history taking, physical examination, MRI scans, lumbar punctures, and visual evoked potentials, and uses the McDonald criteria for diagnosis. The website provides information about the treatment of MS, including medications that slow the disease, strategies for shortening exacerbations (schubs), symptom management, and rehabilitation, as well as aspects such as diet, stopping medication and driving with MS. | Disease & Treatment → Neurological Disorders 100 | neurologist 10 multiple sclerosis 39 diagnosis 1490 rehabilitation 1512 treatment 21203 | |
| martinehooptopbeter.nl | martinehooptopbeter.nl | Martine Hoopt received an MS diagnosis in August 2010, which significantly reduced her mobility despite medication. The website focuses on a stem cell transplant as a potential solution, as doctors in the Netherlands cannot help her. The donation campaign is aimed at financing this treatment in Mexico. The website contains updates about Martine's fight against MS, rehabilitation, and successful milestones, such as lifting her foot and walking, and her first birthday after the transplant. | Charities → Fundraising 1005 | stem cell transplant 12 multiple sclerosis 39 rehabilitation 1512 donation 5110 blog 13392 | Utrecht → Zeist 2644 |
| cocooncoach.nl | Cocoon Coach | The website describes walking coaching as a way to learn to let go and focus on renewal, with a particular focus on restoring energy and balance in life. Cocoon Coach offers reintegration guidance, both for individuals and for employers, specializing in reintegration pathways (Poortwachterswet) and Second Track guidance. The website emphasizes the possibility of a tailored program, including mindfulness and walking coaching, aimed at overcoming fears and strengthening one's own strength. | Outdoor Adventures → Walking 1260 | walking coaching 219 lifestyle coaching 339 reintegration 1157 mindfulness 1789 goal 4974 | |
| kennisnetwerkms.nl | MS Knowledge Network in long-term care | The network consists of five expertise centers and a knowledge center, working together to provide better MS+ care. The centers offer expertise for people with severe functional limitations and health complications resulting from MS, requiring specialized knowledge and intensive support. Knowledge is shared through training, workplace learning, research, and translation into knowledge products, which is also shared with other caregivers. | Networking → Professional Networks 222 | ms 55 knowledge 3528 network 11123 care 12338 | Sittard-Geleen → Sittard 1997 |
| grunnmoves.nl | Grunn MoveS | The project organizes events such as 'Climbing against MS' and 'The Grunn MoveS Cycling Tour', and provides activities like an annual oliebollen (Dutch New Year's pastry) sale. The website serves as a platform to raise awareness about MS and to raise funds for research. Grunn MoveS encourages individual efforts to get people moving and contribute to a future where MS is not an obstacle. | Initiatives & Collaboration → Initiatives 459 | ms 55 movement 2304 event 45199 | Netherlands → Groningen 23734 |
| mamametms.nl | Mama with MS | The site is a blog from Tanja, a mama with MS, sharing her experiences with the disease and the HSCT treatment in Russia. The website contains information about various aspects of the HSCT treatment, including the steps in Russia, practical information, and tips for crowdfunding. There are also pages with product recommendations, webshop items (bracelets, lottery tickets), and information about the ‘Mama with MS’ foundation. | | multiple sclerosis 39 crowdfunding 246 bracelet 1053 blog 13392 | |
| impulse-ergotherapie.nl | Impulse Ergotherapie & Coaching | The practice focuses on helping clients regain control over their daily activities, often following an illness, condition, or overexertion. Occupational therapy is applied to make daily tasks possible again through practical exercises and advice, while coaching focuses on actually implementing these adaptations. The treatment of fatigue aims to identify the causes and teach strategies to improve energy balance and enhance the quality of life. | Rehabilitation → Occupational Therapy 380 | fatigue 105 occupational therapy 211 life 2673 coach 25810 | |
| upendo.nl | Upendo | The website provides information on various treatment options, including stem cell therapy and personalized support. Upendo offers advice and coaching in areas such as nutrition and lifestyle, focusing on improving the quality of life for MS patients. The organization provides news, updates, and webinars to keep patients and visitors informed about the latest developments and insights in MS treatment. | Home & Community Care → Individual Care 78 | multiple sclerosis 39 patient 4082 care 12338 treatment 21203 | |
| f4ms.nl | Stichting Future 4 MS | The foundation was established to create a safe and stimulating place where people with MS can live and lead an active lifestyle. Within the services provided, care encompasses various aspects, including nursing services, home care, and social welfare centers. The foundation offers comfortable housing with support, including building automation and innovative aids for people with MS. | Charities → Fundraising 1005 | inclusivity 109 housing 4378 care 12338 | |
| henriettenooren.nl | National MS Foundation | The book provides a realistic description of life with PPMS, a less common form of MS, from the perspective of the author. The author describes her experiences in a light and sometimes humorous way, while keeping in mind the importance of the disease. The website includes links to a donation page for the National MS Foundation, personal messages from readers, and a blog with articles about MS. | Personal → Personal Stories 1027 | multiple sclerosis 39 narrative 119 book 11396 | |
| cleo-app.nl | Cleo | The app offers personalized information and tailored content about Multiple Sclerosis. Users can maintain a personal journal, track their health data, share it with their doctor, and set reminders for medication and appointments. Cleo also offers health programs designed by specialists to help users manage their lives with Multiple Sclerosis. | Apps → Health Apps 29 | multiple sclerosis 39 journal 294 app 4595 | |
| msms.nl | De Baar Advies & Organisatie | The MSMS symposium, which began in 2012, focuses on MS care professionals and is the most visited independent symposium in the Netherlands. MSMS 2026 will take place on January 29, 2026, at De Reehorst in Ede, after a shift from the traditional annual date due to busy periods and holidays. The website provides information about sponsorship, aftermovies of previous editions, and a newsletter sign-up for updates on the symposium. | Conferences & Meetings → Medical Conferences 68 | professional association 31 symposium 339 sponsorship 2686 newsletter 6504 | Gelderland → Ede 5104 |
| resetms4rob.nl | resetMS4rob | The project has raised € 64,806.52 and the treatment is currently taking place in Mexico. Donations are made to the resetMS4rob foundation in the name of St. and then donated to the National MS Fund. The website shares updates on the adventure of the person with MS and offers followers the opportunity to stay informed via blogs and Instagram. | Stories → Travel Blogs 1016 | ms 55 adventure 919 instagram 1216 donation 5110 foundation 6678 blog 13392 | |
| wegmetmsvoorans.nl | Stichting Weg Met MS | Ans Klauwers describes her diagnosis with RRMS in 2000 and the subsequent progressive decline of her health, leading to her complete disability. The website provides her personal motivation: to maintain her mobility and the opportunity to fully enjoy time with her grandchildren. The website contains information about a trial apitherapy project, where a beekeeper stung her to stimulate her immune system. | Charities → Fundraising 1005 | stem cell transplant 12 grandchild 23 | |
| oppadmetanne.nl | Sprout – Samen op pad | The website is managed by Anne van Rijsingen, a walking coach with experience in multiple sclerosis, who helps people concretize their needs and provide them with tools. Anne van Rijsingen describes her background, including a diagnosis of multiple sclerosis in 2004, and how her experience has led to a focus on the importance of movement and healthy eating. The website showcases examples of walking activities with clients, including a walk in the Wamberg and participation in the 5 km vestingloop in Den Bosch. | Self-Help → Life Questions 824 | multiple sclerosis 39 walking coaching 219 need 469 movement 2304 nutrition 4935 nature 9094 | North-Brabant → 's-Hertogenbosch 8868 |
| launaarmoskou.nl | Action Team | Laura Koot, a 34-year-old woman, was diagnosed with MS in 2010 and has experienced significant mobility limitations, including the loss of her ability to move independently. After treatment in the Netherlands, Laura has started stem cell therapy in Moscow, a treatment that offers the possibility of stopping or even improving her condition. An action team is fundraising through crowdfunding to cover the € 70,000,- costs of the treatment, as it is not covered by the Dutch insurance. | Fundraising → Crowdfunding 22 | stem cell therapy 10 ms 55 crowdfunding 246 | |
| poenvoorjeroen.nl | Poen voor Jeroen Foundation | The website describes Jeroen’s situation, who has been living with MS for more than 21 years and is looking for a treatment that can stop the disease. A stem cell treatment in Moscow is presented as Jeroen’s last resort, with an explanation of the HSCT treatment. The website offers various ways to support Jeroen, including a direct bank transfer and donating via GeeF.nl, with the ultimate goal of raising the € 50,000 amount. | Fundraising → Crowdfunding 22 | jeroen 10 multiple sclerosis 39 crowdfunding 246 foundation 6678 | Overijssel → Kampen 2161 |
| silariaans.nl | Sil Ariaans Leefstijltraining MS en ME/cvs | The training is developed by Sil Ariaans, who herself has experience with MS and successfully improved her condition after years of treatment and self-research. The website provides a free e-book and a questionnaire to determine whether the lifestyle training is suitable for the visitor, and a Facebook Community. A video (Vimeo) illustrates a part of the training and emphasizes that individuals with MS and ME/cvs are still able to move and improve their condition. | | ms 55 fatigue 105 questionnaire 666 e-book 1060 | |
| accelerateandexcel.nl | BiogenLinc | The website offers access to videos of cycle meetings, including a meeting from January 12, 2021, and January 17, 2022. A new online nutrition program on CLEO is introduced, along with an introductory video from BiogenLinc. The video discusses the importance of Vumerity for people with MS, presented by Michel Vounatsos and Chirfi Guindo. | Dog Training → Behavior 413 | trust 1147 results 3954 | |
| blissfulimperfection.nl | Blissful Imperfection | The website was started by Bernabela, an experienced individual after receiving a Multiple Sclerosis diagnosis, who helps people to shape their lives after receiving a diagnosis. Blissful Imperfection offers post-diagnosis support, including coaching, speaking, and guest teaching, focusing on creating a perspective and centralizing the individual's life around the diagnosis. Bernabela emphasizes that living with a chronic illness can be challenging, but it is still important to prioritize one's own life. | Personal Stories → Autobiography 222 | speaking 217 illness 225 diagnosis 1490 life 2673 coach 25810 | South-Holland → Rotterdam 25048 |
| coachpraktijk-veerkracht.nl | Coachpraktijk Veerkracht | The practice focuses on guiding individuals with MS in coping with the effects of the disease on their daily lives. The 'Managing MS Differently' coaching program encourages awareness of the impact of mindset on life with MS, with the goal of becoming mentally stronger, more self-aware, and more resilient. Individual coaching sessions are available for specific problems or questions, both online and in the practice in Valkenburg. | Personal Development → Motivation 434 | self-determination 24 ms 55 coaching session 59 mindset 782 resilience 1091 self-confidence 1173 | Limburg → Valkenburg aan de Geul 1233 |
| induelmetms.nl | Stichting 'In Duel met MS' | The foundation raises funds to enable MS patients to undergo stem cell transplants, as this treatment is not offered or reimbursed in the Netherlands. Patients often travel to other countries for this treatment, and the foundation facilitates this travel through crowdfunding. The foundation oversees the income and ensures that donations are used correctly to support the treatments. The foundation also organizes activities such as bingo to raise money. | Philanthropy → Donations 140 | stem cell therapy 10 transplant 23 ms 55 patient 4082 donation 5110 foundation 6678 | |
| irmasmissie.nl | Irma's MisSie | Irma Kremer, a 48-year-old mother of five, uses the site to document her fight against MS and collect donations. Prior to her diagnosis, Irma enjoyed an active life, but now she experiences increasing limitations and reduced self-sufficiency. A stem cell transplant in Moscow offers the possibility of regaining her freedom and independence, but requires significant financial resources. | Initiatives & Projects → Social Initiatives 45 | stem cell transplant 12 ms 55 fatigue 105 crowdfunding 246 freedom 848 | |
| jeremybeatsms.nl | Jeremy beats MS | Jeremy Latty, 32 years old, has been living with MS since 2021 and has been unsuccessfully treated in the Netherlands. He is seeking a stem cell transplant in Mexico, which costs €60,000 and is not covered by Dutch healthcare insurance. The website serves to raise funds to finance this treatment and describes Jeremy’s situation and personal circumstances. | Personal → Personal Stories 1027 | transplant 23 ms 55 donation 5110 | Friesland → Leeuwarden 6068 |
| louisedelange.nl | LouiseDeLange | After receiving an MS diagnosis in 2012, Louise De Lange refused to accept the pessimistic outlook presented by a specialist and embarked on her own research into potential MS cures. During her research, she discovered connections between MS and other autoimmune diseases and neurological disorders, gaining information from specialists, scientists, and the pharmaceutical industry. The book contains 224 pages and provides readers with information and tools to actively engage with the disease. | Diseases → Autoimmune Diseases 31 | autoimmune disease 11 cure 20 ms 55 research 8967 book 11396 | |
| marnixsmulders.nl | N.V. | Marnix Smulders describes himself as a politician, father, husband, and Hostmanship Specialist. The website includes a blog where he shares his experiences with Hostmanship and personal reflections. He shares an experience of a positive encounter with the nursing staff in the St Jansdal Hospital, where his daughter regularly receives vaccinations. | Personal → Personal Stories 1027 | daughter 108 hospital 560 politics 1259 blog 13392 | Gelderland → Elburg 846 |
| mikemsvrij.nl | Stichting MikeMSvrij | Mike, 34 years old, has been diagnosed with RRMS (Multiple Sclerosis) since March 2008, which has made his life uncertain. He experiences disease-related ups and downs and fears becoming permanently wheelchair-bound if he cannot stop the disease. Stem cell therapy (HSCT) is seen as Mike's only hope to stop his MS and slow its progression. However, the treatment is not available in the Netherlands and costs €75,000. The website is geared towards collecting donations to enable Mike to undergo HSCT in Mexico, with every donation increased by 40 cents due to transaction costs. | Philanthropy → Donations 140 | stem cell therapy 10 mexico 19 multiple sclerosis 39 disease 285 wheelchair 306 donation 5110 | |
| msips-biobank.nl | MS Centrum Noord Nederland | The biobank generates iPS-cell lines from blood samples donated by individuals with MS, their relatives, and individuals without MS. The MSiPS Biobank was established by MS Centrum Noord Nederland in collaboration with the University Medical Center Groningen and is funded by the Vriendenloterij and Stichting MS Research. The website offers information for both participants and researchers who wish to utilize the biobank. | Culture → Science 5261 | biobank 12 multiple sclerosis 39 research 8967 | Netherlands → Groningen 23734 |
| resetms4elske.nl | ResetMS4Elske | The website contains blogs and stories about Elske’s experiences, starting with her MS diagnosis and subsequent HSCT treatment in Mexico. Elske describes her recovery after the treatment, with updates on the status after 2, 1 and 6 months post-HSCT. The website also documents the crowdfunding campaign ‘ResetMS4Elske’, launched on March 21, 2023, and successfully financed. | Religious Life → Social Activity 229 | ms 55 crowdfunding 246 recovery 868 diagnosis 1490 blog 13392 | Utrecht → Soest 2027 |
| sanmetms.nl | sanmetms.nl | Sandra, a 38-year-old mother, received a diagnosis of MS in October 2017 after years of vague complaints and pain attacks. Prior to receiving the MS diagnosis, Sandra had an active and successful life with sports, education, and her own practice. The MS diagnosis led to a sudden paralysis of her right side and loss of mobility, making her dependent on donations to regain her life. | Personal Stories → Illness Stories 13 | sandra 13 ms 55 hand 237 mobility 1264 pain 1919 donation 5110 | |
| wishyoumore.nl | Wish You More counseling & coaching | The website describes the experiences of people with MS, including the social difficulties that arise due to the illness and the lack of understanding from others. It discusses the physical fatigue associated with MS, which goes beyond normal post-illness or travel fatigue. The website offers the possibility of a free consultation and a phone number for contact. | Personal Stories → Illness 103 | stigma 20 ms 55 fatigue 105 | |
| maximemoret.nl | To the Max | Maxime Moret is the owner of 'To the Max', a Lash & Brow Expert, as well as a DJ and podcast host. She shares her personal story, particularly her experiences with MS and ADHD, emphasizing the connection between body and mind. The website features a blog and podcasts where she shares her insights and inspiration. | Entertainment → Podcasts 1067 Personal → Personal Stories 1027 | ms 55 adhd 354 podcast 3328 story 8285 | |
| 40lampjes.nl | 40lampjes.nl | Jente, a 55-year-old single mother with MS, shares her personal experiences with the disease. She describes her fatigue and rejection of work due to the illness. The website offers information on recommended nutrition for people with MS, informative links, and a contact form. | Social → Personal Blog 2718 | ms 55 fatigue 105 nutrition 4935 blog 13392 | |
| multiple-successen.nl | multiple-successen.nl | The website seeks individuals with MS who remain motivated to continue working in their careers despite their diagnosis. The platform encourages the sharing of success stories, with an emphasis on people who have kept their MS hidden. Anonymity is guaranteed, allowing visitors to share their stories anonymously and provide support to others with MS. | Education & Training → Career 1765 | role model 36 multiple sclerosis 39 success 603 career 2513 story 8285 | |
| m-menke.nl | coronelsports | Monique has been focused on optimizing her health for nearly 25 years while living with MS, with exercise playing a significant role. Following consultation with ‘coronelsports’, Monique participated in a workshop about cold plunging, incorporating the breathing techniques and meditation of the Wim Hof Method. During the cold plunge, Monique initially experienced a temporary reduction in her nerve pain, a symptom of her MS, which she found to be a positive experience. | Alternative Medicine → Wim Hof Method 31 | wim hof method 20 ms 55 breathing 976 pain 1919 | |
| ikben-linda.nl | Linda | The website emphasizes the importance of listening without judgment and guiding the client to find the solutions to their own problems. Linda offers walking coaching, focused on helping people who suffer from fatigue, tension, and emotional blockages, such as problems related to work, relationships, or lifestyle. The website explains that walking coaching, especially walking coaching in nature, is a safe and less confrontational way to promote personal growth and relaxation. | Walking → Walking Coaching 189 | walking coaching 219 self-confidence 1173 walk 2161 emotion 2169 relaxation 3968 | |
| ms-vereniging-nederland.kentaa.nl | MS Vereniging Nederland | The association brings together people with MS and those closely involved, fostering the sharing of knowledge and experiences and helping them maintain control over their lives. The association provides information about the disease MS and living with the condition. Through initiatives and donations, funds are collected that directly benefit people with MS. | Social Organization → Patient Organizations 259 | ms 55 initiative 1297 walk 2161 donation 5110 | |